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April 02, 2010


Oh KC. Hugs my friend.

Every mother would. You are right, and your grief is valid. God bless you and your son!

I know how you feel. My son fills my heart so full it hurts, yet some days it breaks wondering where he will go when I die. Who will take care of him. Will they do a good job. I do hope the Heart Ranch is open and in full swing some day so I can have him go there.

I found your blog through Mary Ellen's. My 8 year old has AS, and I so feel your pain. I have the exact same worries. Even though your brain says that God will care for all His children, your mother's heart bleeds. We've known ds's diagnosis "officially" for 18 months, in our hearts for over two years, and I still have periods of intense grieving.

I keep telling myself to focus on his successes, small though they might be. Each is a step towards him becoming a better conversationalist, friend, brother. I also can't sight of my neurotypical children, who indeed will have their own "issues" and challenges that can't be underestimated!

God bless you and your family, my prayers are with you, and keep on keepin' on.

I can only imagine the heartache it all entails. And still, as you know, it *is* true that God will take perfect care of him. He gave him to you and to Ben because you are the right parents for him. Trust in that in the hard places.

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